European Network for Rare and Congenital Anaemias

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ERN EuroBloodNet

The European Reference Network in Rare Hematological Diseases was officially approved and started its activities last March 2017. Coordinated by Prof. Fenaux (Paris) and co-coordinated by Prof. Gulbis (Brussels), EuroBloodNet brings together 66 highly specialized Centers of Expertise in 15 Member States with expertise on oncological and non-oncological diseases.
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Find here the ENERCA legal analysis and recommendations for Centers of Expertise

News

E-learning course in growth disorders and endocrine complications in youth and adults with thalassemia

February 28, 2019

This online e-learning module prepared that will support interactively the Thalasemia guide for Patients, and Thalasemia Guide for Hematologs and Nurses in the framework of the European EQUALITY project. The focus of the ICT-based training programme be hematologs and interested medical doctors. The module include online tests.
Rare Disease Day 2019 is approaching! Show your rare. Show you care.

February 28, 2019

Rare Disease Day is approaching and thousands of events are organised worldwide to celebrate this special day. The theme for Rare Disease Day 2019 is 'Bridging health and social care'. This theme places attention on the importance of bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day. Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better coordinate all aspects of care for people living with a rare disease.