ERN EuroBloodNet

The European Reference Network in Rare Hematological Diseases was officially approved and started its activities last March 2017. Coordinated by Prof. Fenaux (Paris) and co-coordinated by Prof. Gulbis (Brussels), EuroBloodNet brings together 66 highly specialized Centers of Expertise in 15 Member States with expertise on oncological and non-oncological diseases.
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News

  • Rare Anaemias Disorders European Epidemiological Platform (RADeep)

    January 15, 2018

    The Rare Anaemias Disorders European Epidemiological Platform (RADeep) is currently being implemented as a joint venture conceived in the core of ERN-EuroBloodNet to become an umbrella for both new and already existing European patients’ registries in rare anaemias (RAs). We are very happy to anounce the launch of RADeep website! 

  • Winners of the EURORDIS Black Pearl Awards 2018!

    January 15, 2018

     The EURORDIS Black Pearl Awards are presented to the stars of the rare disease community - patient advocates, organisations, policy makers, scientists, companies and media - for their major achievements and their outstanding commitment to the rare disease cause. There were over 350 nominations, representing 37 different countries worldwide. The recipients of the EURORDIS Black Pearl Awards 2018 have been already announced!

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