European Network for Rare and Congenital Anaemias

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ERN EuroBloodNet

The European Reference Network in Rare Hematological Diseases was officially approved and started its activities last March 2017. Coordinated by Prof. Fenaux (Paris) and co-coordinated by Prof. Gulbis (Brussels), EuroBloodNet brings together 66 highly specialized Centers of Expertise in 15 Member States with expertise on oncological and non-oncological diseases.
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Find here the ENERCA legal analysis and recommendations for Centers of Expertise

News

RD-Connect invites ERN members to join the RD-Connect Community

In July 2018 the new RD-Connect Community was launched. This is an international association of individuals and organizations who would like to participate in shaping the rare disease field, promote data sharing and reuse and advance research. Membership is free of charge and open to organisations, research groups and individuals from diverse backgrounds, engaged in rare disease research anywhere in the world. Several ERNs have signed up as members, but you are welcome to register as individual healthcare professionals HCPs and research groups.
RD-Connect announces educational webinar series for ERN Stakeholders

August 21, 2018

RD-Connect is organising a series of webinars aiming to train ERN members on RD-Connect tools designed to help clinicians and researchers study and diagnose rare diseases.