Patient associations

Associations list

Contactgroep pyruvaatkinasedeficiëntie

E-mail:
info-pkd@bloedziekten.nl
Phone:
+31553551641
Website:
http://www.bloedziekten.nl/pkd-en
Adress:
Postbus 83. 1670 AB Medemblik • NETHERLANDS
Contact Person:
Dore Peereboom

The PKD Contact Group provides people with PKD and their loved ones and caregivers with reliable information about PKD and to promote their interests as well as possible. The PKD Contact Group is affiliated with the Dutch Stichting Zeldzame Bloedziekten (Foundation Rare Blood diseases). The website is in the Dutch language. The translation in English will be available soon.) Patients, parents and other family members can join the Facebook group called People with Pyruvate Kinase Deficiency for support and understanding of living with a rare disease.

Diseases

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