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Enzyme Geocode: New section on the ENERCA Website!

European Epidemiological Geocode for prevalence of red blood cell enzyme deficiencies.

October 27, 2015

The European Enzyme Epidemiological Geocode aims to give insight in the prevalence of this type of rare anaemia, but also in time to diagnosis and life expectancy. We invite you to participate!

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RELEVANCE: Regulation of red cell life-span, erythropoiesis, survival, senescence and clearance

The new Europea Project is searching for 15 early stage researchers, educate them, and engage into interactive multidisciplinary work within five major topics related to red blood cells

October 27, 2015

ENERCA will collaborate with the new European Project "Regulation of red cell life-span, erythropoiesis, survival, senescence and clearance” (Acronym RELEVANCE), an international consortium of thirteen partners representing academic research centres, diagnostic labs, blood supply centres, and small industries that combines basic and translational research to improve prognostic, diagnostic and therapeutic approaches on red blood cells production, function, and clearance in healthy humans and patients. 

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Training Course on Diagnosis and Management of Very Rare Red Cell and Iron Disorders

Registration is already opened!

October 9, 2015

The ESH-ENERCA course on Diagnosis and Management of Very Rare Red Cell and Iron Disorders will be held in Lisbon on January 29-30, 2016. Mark your agenda!

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Atypical Hemolytic Uremic Syndrome (aHUS) International Day: 24th September, do not miss it!

Organizations from 13 countries promote September 24 as aHUS worldwide day to give visibility to this very rare disorder

September 16, 2015

With the aim of increasing public awareness about this very rare disease, several activities will take place around the world. Spanish Association for aHUS (ASHUA) will be one of the coordinator in this International Day.

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Professor Joel Corberand dies at the age of 72 years

Prof. Corberand was a dedicated and exceptional ENERCA partner for the Continuing education by e-learning in hematology

August 31, 2015

Professor Joel Corberand, dedicated to vocational education by e-learning in Laboratory Medicine in the Laboratory of Hematology in Centre Hospitalier Universitaire (CHU) of Toulouse, passed away last August 14th at the age of 72 years. From ENERCA we would like to express our most sincere condolences to his family, friends and loved ones.

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ENERCA publishes a report in the new "Journal of Rare Disorders: Diagnosis and Therapy”

The new open access Scientific Journal is focused on articles of rare and chronically debilitating diseases

August 25, 2015

The report entitled: “ENERCA: The European Network for Patients with Rare Anaemias.” and developed by Prof. Joan Lluis Vives Corrons and Dr. Maria del Mar Mañú, presents the main contribution of the network to the field of Rare Anaemias as well as the Health Services provided in the last decade.

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2015 Sultan Bin Khalifa International Thalassemia Awards

Process for submitting proposals is opened until 30th September

August 11, 2015

This edition has been established by H. H. Sheikh Sultan Bin Khalifa Al Nahyan Humanitarian & Scientific Foundation in collaboration with ENERCA partner, Thalassemia International Federation (TIF), and includes three categories: International Awards, Arab Awards and National Awards.

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Realising European Reference Networks for Rare Diseases: a preparatory workshop for the RD field

Follow the road to the European Reference Networks

July 30, 2015

Last 1-2 July ENERCA was present in the workshop “Realising European Reference Networks for Rare Diseases: a preparatory workshop for the RD field”, held in Brussels by EUCERD.

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European Year for Rare Diseases 2019: Vote and make a difference!

The Campaign for a European Year for Rare Diseases 2019 has started

July 14, 2015

Getting as many signatures as possible is essential to support the nomination of 2019 as the European Year for Rare Diseases! Be part of the European rare disease movement and help to ensure rare diseases a continuous public health priority. Make a difference!

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Join the 6th European Symposium on Rare Anaemias this November

The symposium will take place in Amsterdam (The Netherlands), with the 1st Dutch-Belgian Meeting for Patients and Health Professionals

June 15, 2015

6th European Symposium on Rare Anaemias - 1st Dutch-Belgian meeting for patients and health professionals will be held in Amsterdam (The Netherlands) next 21st and 22nd November 2015.  Inscriptions are already opened! We are willing to see you this November in Amsterdam!

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