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NEWS ON COVID-19 AND RARE HAEMATOLOGICAL DISEASES. EuroBloodNet

04/04/2020

The correct treatment and management of infection by Coronavirus (COVID-19) in patients affected by Rare Hematological Diseases may be challenging given the rapid spread of the pandemia and limited literature so far, especially in some countries. At this crucial stage, efforts are being devoted by different initiatives for the generation of documents with indications for the clinical care of these patients. Find below some of the documents produced with the participation of EuroBloodNet members, including language and target (health professionals or patients).

TIF NEWS.THE COVID–19 PANDEMIC AND HAEMOGLOBIN DISORDERS

A contribution of Thalassaemia International Federation to its global patients’ community

24/03/2020

      

TIF NEWS

Oct 8 th 2019

      

European Reference Networks

2019 call for membership to the existing European Reference Networks (ERNs)

30 September - 30 November 2019

The first call for new members to join existing 24 ERNs is open until 30 November 2019. 

Read more about "European Reference Networks"

ISLH October Webinar

Hemoglobinopathy update; Mechanisms , diagnostics and new developments

17 oct 2019 11:00 AM en Hora del este (EE. UU. y Canadá)

Hemoglobinopathies are mostly autosomal recessive disorders and heterozygotes are symptom-free but present various hematological characteristics which are used for their identification in carrier screening programs. The presentation will highlight some unexpected molecular mechanisms showing interesting genotype-phenotype correlations, either ameliorating or deteriorating the clinical presentation of hemoglobinopathy.   

Read more about "ISLH October Webinar"

E-learning course in growth disorders and endocrine complications in youth and adults with thalassemia

This online e-learning module prepared that will support interactively the Thalasemia guide for Patients, and Thalasemia Guide for Hematologs and Nurses in the framework of the European EQUALITY project. The focus of the ICT-based training programme be hematologs and interested medical doctors. The module  include online tests.

Read more about "E-learning course in growth disorders and endocrine complications in youth and adults with thalassemia"

Welcome to the EHA Campus!

Peer reviewed online education and training for hematology professionals

Visit the EHA Campus now! Are you interested in strengthening your hematology knowledge? The EHA Campus is the place to be for online hematology education. This user-friendly platform is packed with interactive learning tools, designed and reviewed by hematology professionals, especially for you. Practice real-life scenarios online from anywhere at any time. The EHA Campus is freely accessible until September 15, 2019 and will be continuously updated with new learning materials.

Read more about "Welcome to the EHA Campus!"

Join the ''TEST2CONTROL'' WEBINAR organized by TIF & Bio Rad Laboratories

8 May 2019 INTERNATIONAL THALASSAEMIA DAY

8 May 2019

Dr. Michael Angastiniotis, Medical Advisor, Thalassaemia International Federation (TIF) & Dr. Daniel E. Bauer, MD PhD

Read more about "Join the ''TEST2CONTROL'' WEBINAR organized by TIF & Bio Rad Laboratories"

Rare Disease Day 2019 is approaching! Show your rare. Show you care.

28 February 2019 will be the eleventh international Rare Disease Day coordinated by EURORDIS

February 28, 2019

  Rare Disease Day is approaching and thousands of events are organised worldwide to celebrate this special day. The theme for Rare Disease Day 2019 is 'Bridging health and social care'. This theme places attention on the importance of bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day. Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better coordinate all aspects of care for people living with a rare disease.  

Read more about "Rare Disease Day 2019 is approaching! Show your rare. Show you care."

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