Patient associations

Belgium

  • Action Drépanocytose/Sickle cell anemia action A.S.B.L.

    More info

  • Association Belge de Thalassémie asbl

    Rue Catalogne 56 - 1495 Villers-la-Ville

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Villers-la-Ville

  • Association Belge de Thalassémie asbl

    Rue Catalogne 56 - 1495 Villers-la-Ville

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Spain

BADAJOZ

  • ALHETA

    AVDA JOSE Mª ALCARAZ Y ALENDA Nº20 ENTREPLANTA - 06011 BADAJOZ

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Bilbao

  • Inter-University Chair BBVA Foundation - Provincial Government of Biscay in Law and the Human Genome University of Deusto and University of the Basque Country

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Burriana

  • ASHUA - Atypical Hemolytic Uremic Syndrome (aHUS)

    C/ Rey Juan Carlos I, 18 - 12530 Burriana

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El Puerto de Santa María (Cadiz)

  • ASOCIACION DE FAMILIARES Y ENFERMOS DE ANEMIA DISERITROPOYETICA CONGENITA (ADISCON)

    Avda. del Ejército 1B, 4°-1 - 11500 El Puerto de Santa María (Cadiz)

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IGUALADA (BARCELONA)

  • Spanish PNH Association

    SANT CARLES, 31, 2º 4º - 08700 IGUALADA (BARCELONA)

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Madrid

  • Asociacion Española de Anemia de Fanconi

    C/ Morando nº 8, 2º A - 28029 Madrid

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Netherlands

Bunnik

  • Oscar Netherlands

    Postbus 91 - 3980 CB Bunnik

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medemblik

  • Stichting Zeldzame Bloedziekten

    Postbus 83 - 1670 AB medemblik

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France

Créteil

  • Fédération nationale des associations de Malades Drépanocytaires et Thalassémiques (FMDT SOS Globi)

    CHU Henri Mondor-Laboratoire de Biochimie- 51 avenue du Maréchal de Lattre de Tassigny - 94000 Créteil

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France

  • Association Française de la Maladie de Blackfan-Diamond

    8, rue Jehan Fouquet - 37000 France

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Strasbourg

  • DORYS

    1a place des orphelins - 67200 Strasbourg

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Italy

Castello d'Argile

GENOVA

  • ASSOCIAZIONE LIGURE THALASSEMICI ONLUS

    C/O E.O. OSPEDALI GALLIERA VIA VOLTA 8 - 16128 GENOVA

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Milan

  • STEM onlus - Study and treatment of patients with hematological diseases

    Via F Sforza, 35 - 20122 Milan

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  • AIEPN onlus - Italian Association PNH

    c/o Foundation IRCCS Ca' Granda Ospedale Maggiore Policlinico - 20122 Milan

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Napoli

  • AIRFA Onlus

    Piazza G. Bovio, 14 - 80133 Napoli

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United Kingdom

  • UK Thalassaemia Society

    19 The Broadway, Southgate - N14 6PH London

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  • The Sickle Cell Society

    54 Station Road - NW10 4UA London

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  • Fanconi Hope

    PO Box 905, - PO1 9JG Southsea

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  • Diamond Blackfan Anaemia UK

    Heathcote Cottages, 71-73 Main Street - S44 6UR Palterton, Derbyshire

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  • Sickle Cell and Young Stroke Survivors

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  • Pyruvate Kinase Deficiency Support Group

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London

  • UK Thalassaemia Society

    19 The Broadway, Southgate - N14 6PH London

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  • The Sickle Cell Society

    54 Station Road - NW10 4UA London

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Palterton, Derbyshire

  • Diamond Blackfan Anaemia UK

    Heathcote Cottages, 71-73 Main Street - S44 6UR Palterton, Derbyshire

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Southsea

  • Fanconi Hope

    PO Box 905, - PO1 9JG Southsea

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Bulgaria

Sofia

  • Thalassaemics’ organization in Bulgaria

    4-6 Lubata, fl. 5, office 15 - 1000 Sofia

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Cyprus

Nicosia

  • Thalassaemia International Federation

    P.O. Box 28807 - 2007 Strovolos Nicosia

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Romania

  • Romanian Association of Major Thalassaemia - Asociatia Persoanelor cu Talasemie Majora

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Germany

Berlin

  • Diamond-Blackfan-Anämie Selbsthilfegruppe e. V.

    Dubrowstr. 41 - 14129 Berlin

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Kiel

  • Orpha Selbsthilfe - Treffpunkt für Menschen mit seltenen Erkrankungen

    Hamburger Chaussee 99 - 24113 Kiel

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Waiblingen

  • Thalassämiehilfe ohne Grenzen e.V.

    Salierstr. 1/1 - D-71334 Waiblingen

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Switzerland

Bellinzona

  • Associazione Malattie genetiche Rare Svizzera Italiana

    Casella postale 1090 - 6900 Bellinzona

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Australia

Darlinghurst

  • Genetic Alliance Australia

    C-/ Garvan Institute of Medical Research - 2010 Darlinghurst

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