Educational material

All About Thalasaemia

The Thalassaemia International Federation (TIF) dedicates this book to all the children in the world born with Thalassaemia. To their indomitable will to survive, their inspiring fight against the disease, their beautiful dreams of a good life and a bright future. TIF is a partner of ENERCA and its educational publications provide concise, up-to-date information on all aspects of thalassaemia, from prevention to clinical management.

ENERCA video about haemoglobinopathies and children

Haemoglobinopathies are inherited blood disorders that reduce the production of haemoglobin, a substance within red blood cells that carries oxigen through all the body. Haemoglobinopathies are inherited illnesses that can pass from parents to their children. Get informed! All you need to do is a haemogram and a haemoglobins study. Ask your family doctor. Even parents who are both carriers of a haemoglobinopathy can have a healthy family together.

The video has been designed by ENERCA professionals to explain the importance of prenatal screenings. It is available also in Spanish, Portuguese, Italian and French at Vimeo.

Iron Warriors

The Iron Warriors club was designed to help children living with Thalassaemia cope with their life and treatment. ENERCA supports the initiative through the Spanish translation of the second Iron Warriors issue, titled Guerreros del Hierro. This magazine, supported by ApoPharma Inc. and SOBI (Swedish Orphan Biovitrum), is a collection of comics, activities and information about Thalassemia.

Blood transfusion comic

It is addressed to children affected by Sickle cell disease, Thalassaemia or other rare anaemia with blood transfusion requirement, their parents and relatives and also to teachers or other people involve in their life. This comic is aimed to improve children understanding and public awareness about blood transfusion therapy.

Thalassaemia comic

It is addressed to children affected by Thalassaemia, their parents and relatives and also to teachers or other people involve in their life. This comic is aimed to improve children understanding and public awareness about clinical aspects and treatment of Thalassaemia.

Sickle cell disease comic

It is addressed to children affected by Sick cell disease, their parents and relatives and also to teachers or other people involve in their life. This comic is aimed to improve children understanding and public awareness about clinical aspects and treatment of Sickle cell disease.

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