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Collaboration

EPIRARE

A picture of the existing registries at European level

www.epirare.eu

EPIRARE is funded in 2010 by the European Commission in order to build consensus and synergies to address regulatory, ethical and technical issues associated with the registration of rare diseases patients and to elaborate possible policy scenarios. Sharing the objective of having a picture of the existing registries at European level, collaboration was established with EPIRARE project.

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Co-funded by the Health Programme of the European Union.