Agenda

5th International Summer School on Rare Diseases and Orphan Drug Registries

September 18-22, 2017

Rome, Italy

Organized by:

Istituto Superiore di Sanità

Location:

 Istituto Superiore di Sanità, Rome, Italy

The International Summer school intend i) to promote the establishment of Findable, Accessible, Interoperable, Reusable (FAIR) registries in compliance with IRDiRC and EU Recommendations and ii) to support cooperation among different registry stakeholders and coordination with registries that are developed within European Reference Networks and National Plans in the EU.

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